I wanted to share my brave little boy’s story of how he is coping with acute lymphoblastic leukaemia (ALL) and still smiling. When my son was eighteen months old he lost at least a liter of blood from his nose. The bottom of his cot was covered in blood.
Acute lymphoblastic leukaemia is a type of cancer that affects the white blood cells. It progresses rapidly and aggressively and requires immediate treatment. Both adults and children can be affected.
Acute lymphoblastic leukaemia is very rare, with around 650 people diagnosed with the condition each year in the UK. Half of all cases diagnosed are in adults and half in children. NHS
We rushed him to the children’s ward and they admitted him for a few nights while they performed a number of different tests on him. They couldn’t find the cause. He was transferred to a more advanced hospital
When we got there the porters took me and my son to the Oncology ward. They did even more tests. They also took a bone sample from his back. I knew then it was something bad. The Doctor told us it was either Acute lymphoblastic leukaemia (ALL) or a brain tumour.
My Baby Had Acute Lymphoblastic Leukaemia
The doctor took me and my dad to a different room and spoke to us and his exact words were ” I am sorry to tell you this but your son has got A.L.L”
We asked the doctor what A.L.L was and he told us it stood for Acute lymphoblastic leukaemia (ALL) .
Acute lymphocytic leukaemia (ALL), also called acute lymphoblasticlLeukaemia is a cancer that starts from white blood cells called lymphocytes in the bone marrow (the soft inner part of the bones, where new blood cells are made). Cancer.Org
I was beside myself at this point. My poor baby, I wanted to take it all away from him, I felt helpless, so useless. Why was this happening to us to my bubbly little boy?
Was he going to die?
I broke down crying. He had to keep going back into in hospital every 4 to 6 weeks where he was given intense chemotherapy. He kept on having nose bleeds and we had to keep taking him back to the hospital for blood transfusions. It was slowly killing me.
The worst part was when I had to take him down to theater and they had to put a central line in. They had to make an insertion in the side of his neck and put a little tube down his throat to connect it to his heart. Then they made another open wound and pulled the tube out and left it to dangle from his chest. It was horrific.
He is 3 years old now and is still receiving chemotherapy for acute lymphoblastic leukaemia and I am so proud of my little boy. I can only hope that my little boy doesn’t get it again. I wish I could take the pain away from him but I can’t.
All I need to do is stay strong for him and he is going to live a great life. I’m going to try my best to give him the best future he could ask for.
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