This is an anonymous blog post
My son Jaydon was born on Friday 23rd May 2008, this was the happiest day of my life and I thought nothing or no one could burst my bubble.
But I was very wrong.
We went home on the Saturday morning till on cloud 9.
I tried so hard to breastfeed him but the milk just wasn’t there, so at 10 days old I decided to put him onto formula. This is when it all went wrong.
It started with the screaming, then came the vomiting, than it was the diarrhoea.
This was all within 45 minutes of his very first formula feed.
I thought I would give it a few days for him to get used to the milk and he would settle down, but he didn’t.
So 4 days later I tried a different brand but a week later he was still the same.
When I say the same, he was screaming 23 hours a day, vomiting up to 10 times a day and diarrhoea up to 12 times a day.
I tried every brand on the market but nothing helped. I went for our six-week check-up and I explained to the doctor what was happening and she said he had reflux so gave him Gaviscon.
Four days later I was back at the doctors and this time he had colic and I was told to use Infacol, once again Jaydon remained the same.
Again I went back to the doctors and this time he had an ear infection.
I didn’t know if I was coming or going or what to believe.
Out of 24 hours I was getting 1 hour of sleep the rest of the time Jaydon was screaming. I was exhausted, Jaydon’s father had left when I was 6 months pregnant so it was just me and I was beginning to struggle.
When Jaydon was 8 weeks old my mum spent the full day with us, up until this point she didn’t realise how bad things were and she said “God he reminds me so much of you”.
You see I have an allergic to cow’s milk and all dairy products.
So once again off I went to the doctors and explained everything to her and said that he needed to go onto soya milk (where I live we can’t get it without a prescription).
And again I was Let down by my GP
I came out of there in tears, the doctor had informed me that Jaydon was a baby, babies cried and I was to get on with it.
I understood babies cried but no baby cries like Jaydon was. It just wasn’t normal. I was exhausted, mum helped me where she could but she worked full time and it wasn’t fair on her.
I would sit on my lounge floor with my head in my hands and cry while Jaydon sat in his bouncer screaming.
The doctors just weren’t listening to me, I knew what was wrong with him and I knew he needed soya milk but the doctors just wouldn’t listen and there was nothing I could do.
I felt a failure as a mother and that I was letting my son down.
I even resorted to taking my mum to the doctors with us hoping that they would listen to her. But that didn’t work either.
I was even told that there was no such thing as a milk allergy.
I felt so let down by the doctors
Then on Sunday 9th November 2008, 6 months after Jaydon was born things finally came to a head. I had reached breaking point.
I went down to my mums (she only lives a 2 minute walk away). When I got there I found my brother was there, I handed him my screaming son and said “Just take him, I can’t do this anymore”.
I was physically and mentally exhausted; I then sat on the floor and cried.
It wasn’t Jaydons fault; he was poorly, if only a doctor would listen to what I was saying.
My brother took us to the out of hours doctor and I told him straight that if he didn’t sort my son out then I was leaving him there as I just couldn’t cope.
Once again the flood gates opened. But what came out of that doctor’s mouth shocked me!. He told me that he would do a prescription for some soya milk. Finally I had a doctor that had listened to me and most importantly believed me.
I came home and gave Jaydon a feed of his new milk and there was silence, NO screaming, NO vomiting and NO diarrhoea.
Just pure silence
Jaydon was asleep and he looked so peaceful. That night was a new start for both of us. I will always be eternally grateful to the doctor I saw that night.
Jaydon is nearly 3 now and still has soya milk on prescription, its meant to get better as he gets older but his is getting worse as I have tried him twice with milk and dairy product as instructed by his consultant but its affects his breathing.
Jaydon and myself went through six months of hell just because the doctors wouldn’t listen.
I am angry that I was let down by my GP but most of all that they let Jaydon down.
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